Welcome to our journey with growth hormones.Hope you enjoy reading!
RSS

Tuesday, July 30, 2013

Our first setback

Well we just got a denial letter from Anthem blue Cross. It basically said there was no evidence that shows that dd is growth hormone deficient. Uhh so I guess its more waiting and I'm waiting for a call from her Dr or the Nutropin company to hear what we do next. I'm pretty sure they appeal these decisions with the insurance company. Its so frustrating to have to wait months for anything to get done. My tiny girl needs something! 39lbs at 9yrs old doesn't sound healthy to me!

This picture shows just how tiny she is!This was almost 2yrs ago. She was almost 7 going into 3rd(she skipped a grade) .The kids in her class just towered over her and they are only 1-2yrs older. Right now this is the height difference between her and kids her age. She looks super tiny! 


Sunday, July 14, 2013

Just in the waiting stage

While we are waiting for the meds to be approved by insurance I thought I'd post lily's birth stats. She was a healthy full term baby(although she wanted to come early at 5mnths pregnant! I was put on bedrest the rest of my pregnancy!) She got steroid shots for her lungs but never actually came early. I had to be induced at 40wks. She was a healthy 7lbs when born 18in which is a normal height in my family. She has always grown slowly but she grew every year about 2in at the very least. Sometime around 4 her growth seemed to slow. We went to an endo who thought she was just small. We didn't get bloodwork done at that time and thats fine because I don't think I would have accepted giving growth hormones at that age. Afterall, I'm 4'11 and dad isn't that tall either at 5'6. I started to notice her growth slowing and the past couple years went from 1in a year to just 4cm this year! The Drs agree thats not normal and treatment would be best if we want her to reach a somewhat normal adult height. At the rate shes growing she probably wouldn't even be my height. Her bone age was 2yrs younger at 6yrs of age. Other than that she has always been very healthy.

Friday, July 12, 2013

Our Journey with Growth Hormones..

Looks like we will be starting a new journey with growth hormones. I'm not exactly thrilled to be starting these for my daughter but we feel this is the best decision. My dd is 8 1/2 almost 9 and not even on the charts for height or weight. Shes 44in and 39lbs! Shes just sooo tiny. Shes always been pretty small BUT she grew at least 2in a year and the Dr was ok with that. The past couple years it got slower and slower until this year shes only grown 4cm! Shes in the exact same shoe size as last year at this time! While it saves us money on clothes and shoes I can see a big difference in size between her and her peers. Her 4yr old cousin is her same size and almost passing her up! We are awaiting approval as we speak but we've already gotten the welcome from the nutropin company and we are just waiting final approval to get started. Its not going to be fun to give shots everyday and I'm really worried about doing it right but I guess I will learn!(They said they'd teach me at her drs office but still!)Heres hoping this all starts quickly and everything goes as planned. We're looking towards alot of growing happening this year!