Welcome to our journey with growth hormones.Hope you enjoy reading!
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Sunday, August 25, 2013

A week has gone by!

We've been on growth hormones for a little over a week now(11 days). Things are going very well. We tried all the recommended injection sites and turns out the only place lily likes is thighs. Theres not much fat anywhere but her thighs so thats probably why. Shes really content with sticking to her thighs and says it really doesn't hurt at all. The first few days she complained of it stinging when the medicine went in but we found leaving the pen out at least 30min before helped alot. Now she says it only stings a little and not all the time. She rarely even feels the needle go in. I'm happy about that! I've noticed shes been eating alot more. Before starting she ate a couple bites and was full but shes now finishing her entire meal and wants more! Shes gained 2lbs already!! I'm liking what I am seeing since she was such skin and bones before. We haven't measured her but I'm guessing she will start growing soon.

Monday, August 19, 2013

Our first few days..

 Things are going good so far. When I say good, I mean Lily hasn't really had any major negative reactions to the growth hormones.As far as reactions go she got a slight headache the second night and the next day was a bit more tired than usual and had a droopy eyelid.Everything seems to have cleared up fine though. First and second day went well we did both thighs. Third day we did stomach and that didn't go so well. She is skin and bones, so finding much fat and skin to pinch up is difficult. She said it hurt alot. I told her we wont try stomach again until she gets some more padding there!
 Sunday we tried upper arm. Again she hated it. Said it hurt more than stomach. I think the problem is not alot of fat there either. Tonight we will try the backside upper bottom area, thats if I can convince her. She wants to go back to the thighs which she says she can hardly feel. I just want a few more injection sites so that she doesn't get too sore continually doing the two legs.
 I'm just counting the days until this injection stuff gets easier! They say kids get used to it.. please happen quickly!!

Thursday, August 15, 2013

Day #1 training and first growth hormone injection!

Today was the Big Day!! We had to wake up earlier than normal to get to Lily's appointment. They wanted to schedule us for 8am but I pushed it to 10am..lol.!. Hey I'm not a morning person and I knew I needed a few extra hours so I could focus on everything I needed to learn.We're still on summer vacation so we've gotten pretty lazy with our mornings. We packed the hormones in a small ice chest we have with the ice packs they sent us with the shipment. Too bad they didn't send us any cool travel gear to help make it easier but we got it to work with what we had. I think lily was excited since she got up faster than normal. Shes not a morning person either!

 Got there right on time with little wait. The Genentech trainer was really helpful and friendly. He showed us how to do everything with a demonstration pen. We got to squirt "fake" hormones into the air. I shot it at my hubby to lighten the mood. Hey that was the best part! Lily was a little uncertain and even though she was happy that she would start growing the uncertainty of what the shot would feel like was making her a little uneasy. The trainer then gave us all instructions of where to give shots and let Lily pick which spot she wanted first.  To a kid its like asking "Hey where would you prefer a knife to be jammed into your skin?". She sat for a few minutes and Dad chimed in how about thigh. She agreed. LOL.. I don't think she really wanted a shot anywhere but Dad got things moving again. We prepped.Lily got the dose dialed and the pen all ready to go.Alcohol swab on.. wait until it dries.. She said she didn't want to do it herself(I really didn't expect her to do it but the trainer asked her if she'd want to). Pen in my hand. I realize something that makes it kind of difficult for me. This pen is made for right handers! I'm a lefty why oh why it feels kind of awkward! I felt pretty nervous. I've never given a shot before and here I am ready to test out my skills on my child!! Are these people crazy??? I figure the needle is sooo small what could possibly go wrong right? I pinch the skin, In it goes and out comes the hormones.

 Lily kinda started whimpering a little before I put it in because she was scared of how it would feel but honestly it was soo fast that she said it really didn't hurt. Next time I promised her I would do it faster and not shake as much. LOL. No bandaid needed as its soo tiny the skin just closes on its own. The trainer teased that Lily already looked taller!! LOL.. I'm still pretty nervous about doing it on my own tomorrow but honestly it wasn't as hard as I thought it would be. In fact I think poking myself while sewing seems much more painful than that teeny tiny needle! I can see her giving herself her own shots in a few months. Dad on the other hand said it will leave it up to us. Hes too scared to try. Men! We go back in 3 months for a checkup. Heres hoping for lots of growth!! 
STATS today: 
Age 8yrs10mnths: 44 1/8in 40lbs

Monday, August 12, 2013

Starting Growth Hormones!

Yay for us! In just a couple days we will receive a shipment with her medicine and extras from Nutropin. We are still waiting to actually get approval from her insurance BUT Nutropin has a program that helps patients even before approval. I am very happy to hear about that since we were pretty bummed about getting denied. Something about the word DENIED and medicine, It sure can make you feel down. I got a call that we were approved for the meds with Nutropins access to care program and I am soo happy they do that. Shipment comes Wednesday, then we go to her Endo to meet with a nurse to show us how to give shots properly. Now that it's becoming more of a reality I am pretty nervous about it. I know it is for the best though.